https://www.theeggeadventure.com/wikimedia/wikimedia/index.php?title=Mindcrowd.org&feed=atom&action=historyMindcrowd.org - Revision history2024-03-29T15:45:07ZRevision history for this page on the wikiMediaWiki 1.41.0https://www.theeggeadventure.com/wikimedia/wikimedia/index.php?title=Mindcrowd.org&diff=2455&oldid=prevBrianegge at 23:50, 22 September 20152015-09-22T23:50:55Z<p></p>
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<tr><td class="diff-marker"></td><td style="background-color: #f8f9fa; color: #202122; font-size: 88%; border-style: solid; border-width: 1px 1px 1px 4px; border-radius: 0.33em; border-color: #eaecf0; vertical-align: top; white-space: pre-wrap;"><div>This activity is part of a research study conducted by Dr. Matthew Huentelman at the Translational Genomics Research Institute (or TGen) in</div></td><td class="diff-marker"></td><td style="background-color: #f8f9fa; color: #202122; font-size: 88%; border-style: solid; border-width: 1px 1px 1px 4px; border-radius: 0.33em; border-color: #eaecf0; vertical-align: top; white-space: pre-wrap;"><div>This activity is part of a research study conducted by Dr. Matthew Huentelman at the Translational Genomics Research Institute (or TGen) in</div></td></tr>
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</table>Brianeggehttps://www.theeggeadventure.com/wikimedia/wikimedia/index.php?title=Mindcrowd.org&diff=2454&oldid=prevBrianegge: Created page with "This activity is part of a research study conducted by Dr. Matthew Huentelman at the Translational Genomics Research Institute (or TGen) in Phoenix, Arizona. The purpose of th..."2015-09-22T23:50:29Z<p>Created page with "This activity is part of a research study conducted by Dr. Matthew Huentelman at the Translational Genomics Research Institute (or TGen) in Phoenix, Arizona. The purpose of th..."</p>
<p><b>New page</b></p><div>This activity is part of a research study conducted by Dr. Matthew Huentelman at the Translational Genomics Research Institute (or TGen) in<br />
Phoenix, Arizona.<br />
The purpose of this research study is to understand the genetics of how the human brain remembers things. Specifically, we want to know how<br />
the way we remember things might change as we get older. If we know the way people's memory changes when they get older we may be able to<br />
understand what changes occur in people who have a brain disease that affects their memory (like Alzheimer's Disease).<br />
What will I have to do?<br />
You will have to take three tests and then you will receive the results of your tests. We would like to use the information you provided and your<br />
test results to create a "Registry" or group of people that we may contact again for future studies on memory.<br />
In some future studies, you may be asked to provide a saliva sample. Dr Huentelman will get your DNA from your saliva. DNA is a substance that<br />
is found in every cell in the human body. Genes are part of DNA and are a "blueprint for life." In future studies, Dr. Huentelman may look at your<br />
genes and your testing results to understand more about memory.<br />
In order to contact you for participation in future studies, you will be asked at the end of this consent form to provide your name and email<br />
address. Dr. Huentelman will contact you through email to see whether you are interested in participating in future memory studies. At that<br />
time, you will be given a new consent form that will describe the new study that is similar to this consent form.<br />
How old do I have to be to participate?<br />
You must be 18 years or older to participate in this study.<br />
Are there any risks?<br />
There are no physical risks involved in participating in this study. Please keep in mind that you are free to end the study at any time.<br />
What do I get out of it?<br />
You will receive feedback about the memory tests you will take and how your results compare with other people who do this activity. We will<br />
also explain what we hope to learn from this research. The final results from this experiment will be posted on the Results page.<br />
Will I get paid and does it cost me anything to participate?<br />
There will be no cost to you if you participate in this study. You will not be compensated for your participation in this study.<br />
Will you share my information with other people?<br />
We will not share any information that you give us. All of your information is stored in a database. If you decide to give us your name and email<br />
address, they will be stored separately from your other personal data and test results. All of our databases are password‐protected and secure.<br />
No one can identify you without access to both of these data sources.<br />
What if I change my mind and don't want to participate in the study anymore?<br />
Your participation in this study is completely voluntary. You may stop participation at any time during the research activity. You can contact Dr.<br />
Huentelman at mhuentelman@tgen.org to withdraw from the study.<br />
What if I have questions or comments?<br />
If you have any questions or comments about this activity, please contact Dr. Matt Huentelman at mhuentelman@tgen.org. Please go to this web<br />
page to find out more about the people involved in this research.<br />
What if I have questions about my rights in this research, have a complaint, or want to report a problem to someone besides the<br />
researcher?<br />
If you have questions about your rights in this research study, please contact: the Western Institutional Review Board [360‐252‐2500] The WIRB is<br />
a group of people who protect the rights of people involved in research studies.<br />
For questions, concerns, suggestions, complaints that are not being addressed by the research team, or in case of research‐related harm, please<br />
contact Stephanie Buchholtz in the TGen Office of Research Compliance at sbuchholtz@tgen.org or 602‐343‐8479.<br />
How do I agree to participate?<br />
By ticking the box next to "I have read and understand...," you are saying that: (1) You agree to take part in this research. (2) You feel like you<br />
understand what is involved in this study. (3) You understand that you are free to leave the study at anytime.<br />
Will you contact me in the future?<br />
You may be recontacted in the future through email to participate in additional research studies. Participation in future studies is completely<br />
voluntary.<br />
I agree to take part in this research. I feel that I understand what I am getting into, and I know I am free to leave the experiment at any time.</div>Brianegge